Two men both in electric wheelchairs, facing each other, chat at a Peer Support Group at Farleigh Hospice.

Motor neurone disease (MND) support

If you’re affected by motor neurone disease (MND), we’re here to help. This page brings together support, guidance, and real experiences to help you feel informed and supported at every stage.

Supporting people living with motor neurone disease

At Farleigh Hospice, we support people living with motor neurone disease (MND) and their families from the point of diagnosis onwards. Our approach is centred on the individual, focusing on what matters to them, how their needs change over time, and how we can help them live as well as possible.

We work closely with GPs, community health teams, specialist services and the MND Association to provide joined-up care. This helps ensure people receive the right support at the right time, whether that is managing symptoms, accessing practical support, or having space to talk things through.

MND affects everyone differently. Our role is to listen, respond and adapt care so it remains appropriate, compassionate and responsive as needs change.

A Farleigh Hospice patient named Joanne, who is living with motor neurone disease, sits in a wheelchair in the Farleigh Hospice Inpatient Unit. She is sharing her experience of care at Farleigh.

Jo’s story: living with MND

Watch Jo share her experience of living with motor neurone disease (MND). In this short video, she reflects on her diagnosis, the changes she has had to adapt to, and the care and support she has received from Farleigh Hospice. She also talks about the difference this support has made to both her and her family.

This story offers a personal insight into life with MND and highlights the importance of compassionate, joined-up care provided by Farleigh Hospice.

Resources for people living with motor neurone disease

Alongside the care and guidance provided by Farleigh Hospice, you may find further information and specialist support through national and community organisations.

Motor Neurone Disease Association – comprehensive information about MND, practical support, research updates and guidance for families and carers: mndassociation.org
Challenging MND – community‑based support, equipment grants and activity opportunities for people living with MND: challengingmnd.org
You may also find this leaflet useful.

Tessa Rose, Farleigh Hospice’s Motor Neurone Disease Coordinator, sits on the edge of a raised garden bed.

A day in the life of Tessa, our MND Coordinator

Supporting people living with motor neurone disease requires time, coordination and a highly personalised approach. At Farleigh Hospice, our MND Coordinator, Tessa, plays a key role in ensuring care is responsive to changing needs. Here, Tessa gives us a glimpse into a typical day supporting patients and families at Farleigh Hospice.

A person living with motor neurone disease sits in a wheelchair, supported by a nurse and her husband at home.

Ann and Peter’s story

Ann and her husband Peter share how Farleigh Hospice has supported them to adapt to life with motor neurone disease, helping Ann stay independent, live at home, and feel supported for the future.

Laura and Terry stand together renewing their vows, with Farleigh Hospice chaplain Susanna beside them.

Laura and Terry’s story

Laura and her husband Terry shared their experience of living with motor neurone disease (MND) and the support they received from Farleigh Hospice during a time of significant change.

Two people sitting in a living space. One person, an older man in glasses, is sitting in a recliner chair with a drink and some snacks on a small table beside him. The other person, a woman with long hair wearing a colorful shirt, is seated on a folding chair next to the table.

Richard and Moira’s story

Richard and Moira share how Farleigh’s support helps them navigate life with motor neurone disease, giving them confidence, comfort and practical guidance at home.

Working together to improve MND care

Discover how Farleigh Hospice is improving motor neurone disease (MND) care in Essex through GP education, hospital training and coordinated support, helping patients and families access the right care at the right time.

Working together to improve MND care

If you need support

Please remember that you are not alone in this journey. Farleigh Hospice is here to help and support you.

If you have any questions about motor neurone disease and the care and support that we offer across mid Essex, please contact us

Call our Advice Line – 01245 455478 – 7 days a week, 8am to 8pm

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